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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hello
Wonder if anyone else has numb patches and finds eating acidy things painful but also has numb patches in their mouth/ tongue?
Jenni x how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hi Jenni ohh not to nice hey yes when mouth swells up which is still fairly often i feel relates to the swelling. hugs inky07 cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Sorry Jenni, can`t help with that one I`m afraid, but I hope the numbness and patches disappear for you. Maybe check with your doc? Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Oh Jenni - how often have I told you that meths mixed with terps isn't a good substitute for gin?? Still sorry to hear your poor mouth is numb and sore though
xxxxxxxxxxx
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 59
Location: North Bucks
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Yes Jenni
I have that a lot, its a very weird thing when bits are numb too. Thought that it was the joy of Sjogrens!
I try to use dry mouth spray from boots, its vaguely nicer than the saliva substitutes on prescription, makes my mouth less sensitive.
Christine xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Jenni - not heard of this - V strange. I would definiely check with your doc with all the other stuff you have going on.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Hi Jenni, don't have numb patches but have experienced burning of my lips very strange! going to mention it next week at hospital appointment x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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i don,t think its the scleroderma christine The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 31
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i am at the moment suffering a very red sore tongue the doctor said it is not thrush .probably all my medication i am on he sugested not to let my mouth get dry so i am constantly sucking on boiled sweets to ease it.When i started methotrexate i had a sore tongue and ulcers . on friday i contacted my rheummy nurse about this and am awaiting a reply.If i here anything a will let you know
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 62
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I have had a horrible tongue since last Christmas. I do get thrush but also the tip is raw and the whole thing is patchy. It gets very sore down the sides as well and certain food and textures definitely make it worse. I actually think it affects my speech at times as it seems to get swollen. My best advice is to stay well away from walnuts as they are killers.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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Hi Jenni,
I have similar problems on and off and it is sometimes connected to anaemia, othertimes not quite sure what tho'.....
As soon as i get symptoms I cut right back on tea, i still drink tea but separately to meal times and only 2/maybe 3cups a day. I drink lots of water and occassional herbal teas, definitely avoid tomatoes (acidic) and ....i hate this bit... avoid chocolate..:( ....for as long as i can manage (...not very long usually!;)
i would check with gp specially if this is new symptoms for you, water is my best advice though and lots of fruit and veg.
Hope it improves very soon,
Love Liz xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Sorry Jenni, can't help sounds weird and worth mentioning to your GP.
love,
Barbara
XXXXX
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